From a Dragonfly Mom: “Does anyone else ever wonder when enough is enough? The constant doctors appointments for all different issues. Everyone thinks R is handling it all so well because she has a smile on her face when they see her. But no one is there at night when her PTSD doesn’t allow her to sleep or the nightmares …
From a Dragonfly Mom: “When my son T was diagnosed, we went from a seemingly healthy little boy to a baby in the PICU after a major surgery in a matter of 48 hours. When we were moved to the hem/onc floor, I met other families in passing, but T was so sick and experienced so many complications that we …
We have 5 years of stories…here’s one from this family: “K was having trouble with coordination, falling often, hand writing, and having headaches in the mornings. We finally took her to her pediatrician, who didn’t seem too concerned but referred us to see a neurologist, who then send us for an MRI at Children’s Hospital the next day. We had …
A Dragonfly Family who benefited from Dragonfly while in Cincinnati for treatment wrote: “The kids are so funny they point out dragonflies everywhere and people look and ask them why dragonflies are so special. We also think the ones we see are the dragonflies that have left the earth and come back to give the ones still here comfort and …
“Dragonfly Family, I have been meaning to write this note for some time…. In the beginning of the summer I was doing a lot of reflection on our summer last year. How hard it was to take E to the pool and watch her look so sick and deal with all the stares and whispers from people around us. In …
From a Dragonfly Mom (reprinted with permission): “Have just had my heart ripped out of my chest and torn into sheds when a group of children just treated my cancer child like a monster and ran away from him up the stairs leaving him all alone in the playroom and when my son came to me crying for a friend …
One of our Dragonfly mom’s posted a note online that echoed the hurt, the frustration and sense of isolation that many of our families experience when their young patient goes through treatment. With her permission, we are posting it here in the hope that it may provide insight for friends, family and others that know a family affected by a …
From A Dragonfly Mom Who Moved With Her Family From South Africa To Los Angeles (For 3 Years) And Then To Cincinnati To Get Treatment For Her Son: “I want to thank you so much for adding our family to the Dragonfly Foundation. We feel so blessed to be a part of this amazing Organization. We were living in Los …
From a Dragonfly Mom: “I want to thank you so much for adding our family to the Dragonfly Foundation. We feel so blessed to be a part of this amazing Organization. We were living in Los Angeles for 3 years and the children’s hospital never connected us with any organizations such as yours. We came to Cincinnati and felt embraced …
Had new Dragonflies visit The Landing today (The Landing is our patient/family space)… Within seconds, the little boy found our “Giving Tree,” where kids can pick toys and books* (see footnote) without any parental intervention. With a big grin, he said, “Can I see your trains?” I said, “Wow, this is great, he already knows we have tons of trains!” …
