“Most days life feels…”normal”…again. Get up. Take the kids to school. Go to work. Come home. Go to bed. Do it all over again day in and day out. Everyone sees that you are back to a “normal” routine again and while that is great 99% of the time… That 1% where it’s not okay sneaks up out of nowhere. …
From a Dragonfly Mom: “Does anyone else ever wonder when enough is enough? The constant doctors appointments for all different issues. Everyone thinks R is handling it all so well because she has a smile on her face when they see her. But no one is there at night when her PTSD doesn’t allow her to sleep or the nightmares …
One of our Dragonfly Mom’s posted this on her blog… Even in light of Carlin’s wonderful MRI results yesterday, I find that when you are the parent of a kid with cancer, elation and sorrow can exist simultaneously. Happiness we can bask in, for the clean scan and that Carlin is currently doing great and feels terrific. Celebrating that we …
From a Dragonfly Mom: “I know it sounds crazy and most will not understand but this never leaves no matter how long the cancer is gone. September is especially hard for me. Not only is it childhood cancer awareness month but tomorrow is the anniversary of Lilli’s diagnosis and the 30th is her cancer free anniversary and the anniversary of …
From a Dragonfly Mom: Yesterday, I was leaving the hospital with N and I was having a lot of mixed emotions…happy that N was coming home, but also some worry of “what am I going to do”. When we got off the elevator, I saw a van with multiple Dragonfly bumper stickers and thought “I’m not alone”. Thank you Dragonfly!”
From a Dragonfly Mom “I just wanted to take a moment to thank you for the tour of The Dragonfly Foundation and the t-shirt. For the first time in almost 7 years I feel compelled to be more open with my story. Up until recently I was almost embarrassed about what I had been through. I believe that The Dragonfly …
Source: http://thriftyhomeschoolmom.blogspot.com/2014/03/14-things-that-i-learned-after-my-son.html Tuesday, March 4, 2014 **This blog post was written by a Dragonfly mom. <3 At 26 years old, I sat in a hospital room on the Oncology floor at Cincinnati Children’s Hospital. I had three very young children and one was just diagnosed with cancer. At that point in my life, I thought I knew most of what …
Summary: A thank you note to CBTS/Dragonfly/Reds for the day at the Great American Ball Park (The author of the note, a Dragonfly mom, also describes what it is like to have a child with cancer.) Family forgoes Christmas gifts and instead makes donation to The Dragonfly Foundation A patient says that “You Are The Best Medicine” It’s amazing what …
From a 10/14/13 NY Times article and blog post written by Perri Klaas, MD Source: http://well.blogs.nytimes.com/2013/10/14/haunted-by-a-childs-illness/?_php=true&_type=blogs&_r=0 “A child’s serious illness can cast a very long shadow across a family, often for years after the crisis has passed. A mother sat in our clinic recently, crying because her older child was having trouble in school. She blamed herself. A couple of …
