An Open Thank You Letter To: Dragonfly co-founders, Ria and Christine, and our friends at The Dragonfly Foundation, This email has been a long time coming. You may need tissues by the time I am finished. I don’t even know where to begin. All I do know is you were the light and continue to be in the darkest time …
From a Dragonfly Mom: “Does anyone else ever wonder when enough is enough? The constant doctors appointments for all different issues. Everyone thinks R is handling it all so well because she has a smile on her face when they see her. But no one is there at night when her PTSD doesn’t allow her to sleep or the nightmares …
From a Dragonfly Mom: “When my son T was diagnosed, we went from a seemingly healthy little boy to a baby in the PICU after a major surgery in a matter of 48 hours. When we were moved to the hem/onc floor, I met other families in passing, but T was so sick and experienced so many complications that we …
One of our Dragonfly mom’s posted a note online that echoed the hurt, the frustration and sense of isolation that many of our families experience when their young patient goes through treatment. With her permission, we are posting it here in the hope that it may provide insight for friends, family and others that know a family affected by a …
A Dragonfly Mom’s FB Post (Reprinted with permission): “The conversation with my 2 year old when I put her to bed tonight… Me: “go to bed like a good girl so we can go to Coney Island soon!” Lucy: “daddy go too?” Me: “yes” Lucy: “daddy’s boo-boo all better?!” Me: “not yet, but soon!” Lucy: “my giraffey has cancer too” …
From a Dragonfly Mom: Yesterday, I was leaving the hospital with N and I was having a lot of mixed emotions…happy that N was coming home, but also some worry of “what am I going to do”. When we got off the elevator, I saw a van with multiple Dragonfly bumper stickers and thought “I’m not alone”. Thank you Dragonfly!”
From a Dragonfly Mom “I just wanted to take a moment to thank you for the tour of The Dragonfly Foundation and the t-shirt. For the first time in almost 7 years I feel compelled to be more open with my story. Up until recently I was almost embarrassed about what I had been through. I believe that The Dragonfly …
It’s never over. Once you or a loved one receives the diagnosis of “cancer,” your world shifts and is never the same again. Many of our Dragonflies, parents, patients, spouses (remember we go to age 30), siblings and offspring (some of our patients have kids) we support are affected by during- and post-traumatic stress (PTS). Even the strongest can be …
Summary: A thank you note to CBTS/Dragonfly/Reds for the day at the Great American Ball Park (The author of the note, a Dragonfly mom, also describes what it is like to have a child with cancer.) Family forgoes Christmas gifts and instead makes donation to The Dragonfly Foundation A patient says that “You Are The Best Medicine” It’s amazing what …
“I’ve probably slept a couple of hours tonight. My whole body is anxious. My stomach is in knots awaiting her ANC and her next temp and her next heart rate. I pray and am hopeful at least a portion of me is. I want M to be well. I want our little family to have a week of peace, heck …
