“I don’t know what we would have done without all the tangible encouragement we were given from [Dragonfly] during our journey… They remember the forgotten ….which includes us parents who know more than we want to about what childhood cancer entails….. They remember the families … The siblings….And they help the children still be children… “I’m still me” is the …
“Most days life feels…”normal”…again. Get up. Take the kids to school. Go to work. Come home. Go to bed. Do it all over again day in and day out. Everyone sees that you are back to a “normal” routine again and while that is great 99% of the time… That 1% where it’s not okay sneaks up out of nowhere. …
On May 16th, a 17-year old Dragonfly sibling spoke at our 6th Annual Golf Classic. Here is a copy of her speech: “My name is C and I am a junior at McAuley High School. 5 years ago when I was only 12 years old, and in the sixth grade my brother D became sick. He went to the doctor …
From a Dragonfly Mom about her young Dragonfly daughter “E.” This family and other Dragonflies attended a concert courtesy of The Matson Family Foundation. Ria & Christine, I have kept a Carepage for E since the beginning of her journey. Yesterday she had scans and my update mentioned a memory of mine that was made possible by Dragonfly. I copied …
One of our Dragonfly dads recently had a medical procedure that resulted in an amputation. (His child has cancer.) When we heard of his struggles we asked if he had been connected to any resources or sources of support. He had not… So we tried to help… It started with a generic comment on an internal email that happened to …
Note received from a Dragonfly Mom (Reprinted with permission): “My 19 year old son became a dragonfly in December. He was diagnosed in 2010 with a stage 3 brain tumor. We came to Cincinnati after the Indianapolis hospital had exhausted all treatment options for him. Cincinnati is close enough to his college for him to undergo the clinical trial and …
Posted yesterday by a Dragonfly Mom whose daughter is doing a Dragonfly event tonight: “R didn’t shed a single tear going to sleep with anesthesia today. She had said this morning that she was going to be brave today. When we were in recovery, the anesthesiologist came by to check on her and he kept saying that he was so …
“We are dealing with the lives and suffering of our children. Most people have not had to witness that with a child. Cancer is hard enough with adults but when you see little helpless eyes looking up at you with complete trust while you hold them down to get an IV, it’s something very few people understand. They don’t understand …
From a Dragonfly Mom: “I have no family here and I could have never made it through without this support system. And I’m not a support group kinda girl!…somewhere the thing that isn’t immediately obvious is not just the care and support you provide the patients. It’s the support system you create for the families. (I’m crying) We are all …
From a Dragonfly Mom: “Nothing in this world hurts more to a parent then seeing your child in pain. Any type of pain… Hurt bones, hurt feelings or broken heart..it doesn’t matter. The need to fix it but, knowing you can’t… might be the next biggest thing to seeing your hurt child. They have to grow up so fast because …
