From a Dragonfly: “I talked with an old school friend today and she asked me questions about what it was like and how I got through it because she said if her child had cancer she didn’t think she could. I told her in the best way I can, it is like you have a box, a small brown box, …
Voicemail from a Dragonfly Mom
“Hi Ria, I wanted to tell you about something that happened to me today. I was wearing my Dragonfly sweatshirt around Kroger’s and a man stopped to ask me if I worked for the Foundation. I told him no, but that my family was a Dragonfly family. He asked me why and I told him about H and how much …
Just visiting made a difference…
From a Dragonfly Mom “I just wanted to take a moment to thank you for the tour of The Dragonfly Foundation and the t-shirt. For the first time in almost 7 years I feel compelled to be more open with my story. Up until recently I was almost embarrassed about what I had been through. I believe that The Dragonfly …
Being a Part of The Dragonfly Family: “I Don’t Ever Want to Leave”
Our families are all part of “The Dragonfly Family.” They have come to us because they or an immediate family member, birth to age 30, is/was enduring cancer or a bone marrow transplant. When they registered with us, they thought they were registering with a “non-profit.” They didn’t expect to become part of a FAMILY.
Reprinted with Permission
One of our Dragonfly Caregivers posted: We love that our families (including patients, their siblings/offspring and parents/caregivers) identify and refer to themselves as “Dragonflies.”
Even on Vacation…
We maintain a private Facebook page for our patients, siblings/offspring, parents/caregivers/spouses. While on vacation, one of our Dragonfly moms posted this picture and note to our families (reprinted with permission): “We love our Dragonfly family!”
Stories from February 2014
From a Dragonfly Patient: “I received a special birthday surprise while here at children’s for chemo from dragonfly! (I couldn’t wait, so I opened it early! :D) Thank you so very much for making a long day of chemo much better!” _______________________________________ From a Dragonfly Sister: “i love the dragonfly foundation because they gave my family hope and happiness. they …
Post Traumatic Stress
It’s never over. Once you or a loved one receives the diagnosis of “cancer,” your world shifts and is never the same again. Many of our Dragonflies, parents, patients, spouses (remember we go to age 30), siblings and offspring (some of our patients have kids) we support are affected by during- and post-traumatic stress (PTS). Even the strongest can be …
Notes, Thanks, & Stories from our Patients/Families
Summary: A thank you note to CBTS/Dragonfly/Reds for the day at the Great American Ball Park (The author of the note, a Dragonfly mom, also describes what it is like to have a child with cancer.) Family forgoes Christmas gifts and instead makes donation to The Dragonfly Foundation A patient says that “You Are The Best Medicine” It’s amazing what …
“I have received so much from Dragonfly…”
From a Dragonfly Mom: “Your blue gift bag is the reason I got to eat some days. Like a godsend, I got your bag a week when things were really tight. Your foundation should of won all the contests, because there is no contest. you guys are there for us in our darkest hour, a beacon of hope when there …