From a Dragonfly Mom “I just wanted to take a moment to thank you for the tour of The Dragonfly Foundation and the t-shirt. For the first time in almost 7 years I feel compelled to be more open with my story. Up until recently I was almost embarrassed about what I had been through. I believe that The Dragonfly …
A Review of The Dragonfly Foundation
Reprinted from GreatNonprofits.com: http://greatnonprofits.org/reviews/the-dragonfly-foundation April 3, 2014 “When my son became a Dragonfly, we were 2 years into his treatment of chemotherapy and high dose steroids. He is still in treatment. I don’t think my family would have had the strength to keep going had the Dragonfly Foundation not swooped in and lifted us up with encouragement, distractions, and support. …
Cancer is a Word…
From the CarePages of one of our Dragonfly families (reprinted with permission): “To be honest I’m not sure I know the words to write… I’m not sure that any words can possess the heartache I feel… I should advise that if you are easily offended you should probably stop reading…this is not easy and as you know, my words are …
The dark side…
“If you could find the sickest kids in a hospital, who go through the most torturous treatment on the road to survival, they would be kids with cancer and blood diseases. Few understand what they and their families endure — and most don’t want to.” — Christine Neitzke, Dragonfly Co-Founder
Small world…
“I belong to a Facebook groups shoes, where someone from the Philippines contact me about some shoes I had. Turns out he is here at Children’s until June with his daughter who is getting chemo. I told them to ask social worker for Dragonfly’s big blue bag!”
“‘A man never stands so tall as when he stoops to help a child.'”
Reprinted with permission: Cancer is relentless. It does not discriminate based on color, race, gender, financial status, or age. It doesn’t stop at just one attempt to steal a life. It divides and mutates in order to deceive the body and accomplish its goal. Cancer tries to conquer a person’s body and destroy the spirit. It causes a person to lose …
What Not To Say… And Some Reasons Why…
Reprinted with permission from the Dragonfly mom that wrote this post on our private Facebook page for our Dragonflies. “My favorite (thing people say) is, “You are so lucky this happened when J was a baby so he’ll never remember it.” First, I don’t put the word ‘lucky” into the same sentence that states my child has cancer. Second, he …
The Fairy Tale Ending! :)
As horrific as treatment is for kids, it is also just as bad for young adults and adults. Beyond the physical challenges they must endure, there is isolation, loss, and the devastation of knowing they are missing out on everything. Before age 30, they probably have not met the love of their life, built a nest egg to fall back …
We host 5+ patient events a week… so relationships can form
One of our Dragonflies had a birthday party at her home. As any young girl would, she invited her besties. These best friends were all friends she met through Dragonfly, other kids who had endured cancer and bone marrow transplants. With an average of 5 patient/family events A WEEK, our 6,000 sq. ft. patient/family space (“The Landing“) and their hospitalizations, …
Being a Part of The Dragonfly Family: “I Don’t Ever Want to Leave”
Our families are all part of “The Dragonfly Family.” They have come to us because they or an immediate family member, birth to age 30, is/was enduring cancer or a bone marrow transplant. When they registered with us, they thought they were registering with a “non-profit.” They didn’t expect to become part of a FAMILY.