“Frankie’s Story”

Frankie is our fun-loving, endless energy, sweet boy.  A mass was discovered two weeks prior to his birth on a fetal MRI.  When he was born on August 8, 2014, it was confirmed to be Neuroblastoma and the tumor was removed when he was ten days old.  A few months after surgery, the Neuroblastoma was present in his liver and …

“Tom’s Story”

My name is Thomas Edwards. I’m 23 years old and I’m currently a full-time college student. I currently work at a local Deli full-time as well while pursuing construction management and with a double major in land surveying. In May of 2017, during the first week of my new job as a land surveyor for a civil engineering firm, I …

“Julia’s Story”

Hello, my name is Julia and I am a Leukemia survivor. On June 28, 2015, I married my best friend in Cincinnati, Ohio. We spent our honeymoon in Venice, Italy, and then returned to start our life together. I was entering my doctorate program for pharmacy in August that year, and I had three days of school orientation before classes …

“Taylor’s Journey”

“Taylor Pearl Heatherly” At the age of 14 (Freshman year of High School), Taylor was diagnosed with Non-Hodgkin’s T-Cell Lymphoblastic Lymphoma, which in layman’s terms is when white blood cells, called lymphocytes, become abnormal and grow in an uncontrolled way. People usually present with painless swelling in the neck, armpit or groin. This is caused by enlarged lymph nodes. When …

Notes from Dragonfly Families (and Relatives)

Notes from Dragonfly Families

“An incredible foundation to say the very least. Thank you Dragonfly Foundation for all you do for our Dragonfly kids and all the Dragonfly families! This world is a better place because of you and all that support this foundation. I can’t find the words to express my thankfulness. We are forever grateful to a Dragonfly family! Thank you.” – …

Dragonfly Friends

Each year, Cincinnati Children’s Hospital’s Cancer & Blood Diseases Institute and Camp Joy host a camp for pediatric cancer patients. One of our Dragonfly parents sent us this note: “The day has arrived Y and F has been waiting for today for camp with friends. When you arrive you don’t know who is bunking with you and happens that these …

Ride For Dragonfly Featured in Enquirer

June 11, 2018 Enquirer.com Article by: Andrea Cruikshank, entitled “”Family of ‘SuperBubz’ starts motorcycle ride to aid Dragonfly” A motorcycle ride spurred by the family and friends of “SuperBubz” is set for Saturday, June 16, at Queen City Harley Davidson in Fairfield. The 6-year-old Walter Zayne “SuperBubz” Herbert, of Fairfield, lost his battle with neuroblastoma on Oct. 6, after more than two years of treatment, …

Joy Card in the Mail

A little bit of joy

STORY: “When we checked the mail today, newly four-year-old J was excited to find an envelope addressed to him. “Is dat mail for me?” he asked excitedly. Mail for him is rare, and he LOVES getting it! He raced to open the envelope in the backseat of my car, not allowing me to help, despite my offers to do so …