Quotes from Dragonfly Families:
“I have no family here and I could have never made it through without this support system. And I’m not a support group kinda girl!…somewhere the thing that isn’t immediately obvious is not just the care and support you provide the patients. It’s the support system you create for the families. (I’m crying) We are all lost and at the hospital you can talk to people in the hall but when you come home there is no one who understands. There is no one to talk to or cry to no matter how close you are to them. They can’t understand. Dragonfly is a family, we make life long friends and see each other through our journeys, no matter where it takes us!” – A Dragonfly Mom
“We are dealing with the lives and suffering of our children. Most people have not had to witness that with a child. Cancer is hard enough with adults but when you see little helpless eyes looking up at you with complete trust while you hold them down to get an IV, it’s something very few people understand. They don’t understand it has to be done. And when you see them defecate, urinate or vomit in front of strangers it’s heart breaking. You’re watching them lose their innocence and their childhood. My child is no longer silly or carefree. Every cough near her terrifies her. Every sore throat makes her think she is headed to the hospital… She has lost almost all of her friendships because she has been sick for so long. She can’t find a single friend who wants to play the video games they all played. She has tried so hard to get them interested but the have moved forward and she is stuck because of her illness and challenges…” — A Dragonfly Mom