“I remember getting ours. It was during our first inpatient stay and we had only found out a few days before what was really wrong with (my son). I was lost in a whirlwind of paperwork, meetings with doctors, and trying to remember how to breathe while I put on a brave face for him. The door opened for what …
“I don’t know what we would have done without all the tangible encouragement we were given from [Dragonfly] during our journey… They remember the forgotten ….which includes us parents who know more than we want to about what childhood cancer entails….. They remember the families … The siblings….And they help the children still be children… “I’m still me” is the …
“Most days life feels…”normal”…again. Get up. Take the kids to school. Go to work. Come home. Go to bed. Do it all over again day in and day out. Everyone sees that you are back to a “normal” routine again and while that is great 99% of the time… That 1% where it’s not okay sneaks up out of nowhere. …
“Ria, I just want you to know, I am having a rough day at work today so at lunch I jumped on to TDF site and the comfort was almost instant. Keep up the good work and know I care about the kiddos and hoping our foundation can be a blessing to families as well.=l=” — A Dragonfly Mom “Thank …
On May 16th, a 17-year old Dragonfly sibling spoke at our 6th Annual Golf Classic. Here is a copy of her speech: “My name is C and I am a junior at McAuley High School. 5 years ago when I was only 12 years old, and in the sixth grade my brother D became sick. He went to the doctor …
From a Dragonfly Mom about her young Dragonfly daughter “E.” This family and other Dragonflies attended a concert courtesy of The Matson Family Foundation. Ria & Christine, I have kept a Carepage for E since the beginning of her journey. Yesterday she had scans and my update mentioned a memory of mine that was made possible by Dragonfly. I copied …
From a Dragonfly Mom: “My husband got cut off nearly hit in the parking lot of our hometown Kroger’s and the guy flipped him off. Being a small town their paths crossed again, shortly after, and the guy approached him and apologized. The gentleman actually looked up, “Dragonfly” to find out what it meant. We have a, ” We love …
This evening, a Dragonfly Mom posted a note to us on our private Facebook page (for our Dragonfly families). (The family recently moved out of state to be closer to their parents.) In addition to managing the challenges of cancer, moving presented a whole new set of stresses. Yet, Dragonfly was able to make a difference, even there… “Dragonflies are everywhere! We went to meet R’s new …
In the best of times, comments and judgements can be hurtful… Imagine being this Dragonfly mom… (Reprinted with permission; original post was made to our Private Dragonfly Family Facebook page.) “I absolutely have to vent… I’m not looking for sympathy or judgment on the person, just need to get it off of my chest. I was just in the 5 …
Note received from a Dragonfly Mom (Reprinted with permission): “My 19 year old son became a dragonfly in December. He was diagnosed in 2010 with a stage 3 brain tumor. We came to Cincinnati after the Indianapolis hospital had exhausted all treatment options for him. Cincinnati is close enough to his college for him to undergo the clinical trial and …
